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SCIENTIFIC PATRONAGE
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MEDIA PATRONAGE
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Place:
Online
Date:
28-29 August 2020
10:20
SMA CONFERENCE
VIII weekend
with SMA
Free access – registration not required
SCIENTIFIC PROGRAMME
We invite you to familiarize yourself with the details of the program.
10:20 - 12:40
Broadcast from the Polish Press Agency
10:20 - 10:55
Inauguration
10:55 - 11:00
Short Film by SMA Foundation Poland
11:00 - 12:40
„The Standard of Care in Spinal Muscular Atrophy vs Patient Needs in Poland”. Panel discussion. „SMA – new perspective of life”. Film premiere
12:40 - 12:50
„Adult living with SMA – Łukasz Kufta”. Reportage
12:50 - 13:00
Memories of the 2019 Weekend with SMA. Video.
13:00 - 14:50
Session 1
13:00 - 13:10
Session Start
13:10 - 13:40
What’s New in Science?
Anna Kordala, M.A., Department of Physiology, Anatomy and Genetics, University of Oxford
13:40 - 14:10
Respiratory Therapy in Emergencies
Prof. Dr Andrew Bush, Professor of Paediatrics and Paediatric Respirology, National Heart and Lung Institute, and Consultant Paediatric Chest Physician, Royal Brompton Harefield NHS Foundation Trust
14:10 - 14:40
Clinical tools to aid the nutritional evaluation of SMA Type 1
Dr Ramona de Amicis, International Center for the Assessment of Nutritional Status, Department of Food, Enviromental and Nutritional Sciences, University of Milan
Andrea Foppiani, Department of Food Enviromental and Nutritional Sciences, University of Milan,
14:40 - 14:50
Wrap-up
10:00 - 11:40
Session 2
10:00 - 10:10
Introduction
10:10 - 10:40
Standards Based Orthopaedic Care
dr Tomasz Potaczek, University Hospital of Orthopaedics and Rehabilitation in Zakopane
10:40 - 11:10
Is There a Link between Scoliosis and Hip Mobility in People with SMA?
dr Agnieszka Stępień, President, Stowarzyszenie Fizjoterapia Polska, Lecturer, Department of Rehabilitation, University of Physical Education in Warsaw
11:10 - 11:40
Scoliosis in the Era of SMA Treatments
dr Albert Fujak, Klinika Ortopedyczna Uniwersytetu Erlangen-Nuerenberg, Malteser Waldkrankenhaus St. Marien GmbH
11:40 - 11:50
Construction, Conservation and Adaptation of a Wheelchair
Emil Stefaniak, Active Rehabilitation Instructor, Foundation for Active Rehabilitation
Dawid Feder, Active Rehabilitation Instructor, Foundation for Active
11:50 - 12:00
„Adult with SMA: Angelika Chrapkiewicz-Gądek”. Reportage.
12:00 - 14:10
Session 3
12:00 - 12:10
Introduction
12:10 - 12:40
The Standard of Care in Anaesthesiology
dr Zbigniew Szkulmowski, kierownik Ośrodka Wentylacji Domowej w Bydgoszczy, przewodniczący Sekcji Wentylacji domowej w Polskim Towarzystwie Anestezjologii i Intensywnej Terapii
12:40 - 13:10
Non-invasive Ventilation in Rehabilitation
dr Anna Pyszora, Katedra Opieki Paliatywnej Collegium Medicum, Uniwersytet Mikołaja Kopernika w Toruniu
13:10 - 13:25
Including a SMA Patient in Non-invasive Ventilation Programme
mgr inż. Paweł Jędrzejewski, kierownik krajowy ds. Organizacji Medycznej Pallmed
13:25 - 13:40
Premiera nowego koflatora Nippy 2 Breas
Kamil Oracz, Przemysław Wojciechowski - Medseven
13:40 - 14:10
Cough Assist and Its Use
Ivana Sundov, Bjeska
14:10 - 14:20
„Adult with SMA: Agata Roczniak”. Reportage
14:20 - 16:30
Session 4
14:20 - 14:30
Introduction
14:30 - 15:00
Immunisation in SMA
lek. med. Renata Laudan, paediatrician
15:00 - 15:30
Childbirth School for Women with SMA
Adam Komar, President, Fundacja Potrafię Pomóc, Founder, Wrocław Childbirth School for People with Disability
15:30 - 16:00
Disability Recognition and Benefits for Disabled People and Their Carers
Ewa Szymczuk, Social Adviser, Centrum Integracja, Warsaw
16:00 - 16:30
Travelling in Poland Without Barriers
Monika Sztajerowska, founder of the website „Wakacje bez barier” (Holidays without barriers), Author of Wakacje bez barier (Holidays without barriers)
16:30 - 16:40
Wrap-up
EVENT LECTURERS
